Donation pages for each of the runners along with their stories are on razoo.com.
Name | Site | Patient Partner | Condition | Location |
Dan Wilkens | Allston | Amanda | Paroxysmal Nocturnal Hemoglobinuria (PNH) | MA |
Pat O’Sullivan | Allston | Chris | Congenital Hyperinsulinism | MA |
Kuber Sampath | Framingham | Sienna | Fibrodysplasia Ossificans Progressiva (FOP) | NY |
Andrew Scholte | Waltham | Emma | Gaucher | Germany |
Jack Prior | Framingham | Brianna | Hereditary Spastic Paraplegia | OH |
Kristin Rapp | Patient member | Will | Homocystenuria (HCU) | PA |
Louis Rivoirard | Cambridge | Grace (IMO) | Hypothalamic Harmatomas | CA |
Colleen Dalton-Petillo | Framingham | Sienna | Hypothalamic Harmatomas | MA |
Jared Marshall | Allston | Mark | Hypothalamic Harmatomas | MD |
Chris Bentis | Framingham | Gail | Idiopathic Hypoparathyroidism | MA |
Marissa Poole | Cambridge | Natali | Jackson-Weiss/Pfeiffer Syndrome | MA |
Pete Smith | Friend/Family | Gina | Langerhans cell histiocytosis (LCH) | MA |
Nick Thurlow | Friend/Family | Tara | Mast Cell Disease | NY |
Lisa Valaika | California | Hayden&Tanner | Mitochondrial Disease | AZ |
Jessi Colund | Cambridge | Erica | MPS1 | WI |
Rob Cook | Framingham | Patrick | Cyclic Vomiting Syndrome (CVS) | CO |
David Cunningham | Waterford | Andrea&Eileen | MS | NJ, Ireland |
Cian O’Brien | Allston | Heather | MS | WI |
Sean McShera | Cambridge | John | MS | FL |
Kai Simon | Framingham | Quinn (IMO) | Niemann Pick A | NY |
Phil Maderia | Allston | Wylder(IMO), Mylee(IMO) | Niemann Pick A,Mitochondrial Disease | AZ |
Shariq Ali | Cambridge | Melissa Higgins | Niemann Pick B | NC |
Beth Songer | Framingham | Shauna Sperou | Rothman Thomson Syndrome (RTS) | MA |
Kelsey Hoontis | Allston | Eli Ramirez | Rothman Thomson Syndrome | OK |
Sharon Cotnam | Allston | Victoria(IMO) | Rothman Thomson Syndrome | VA |
Rebecca Koltvedt | Friend/Family | Donnie | Rubenstein-Taybi Syndrome | MI |
John Koltvedt | Michigan | Donnie | Rubenstein-Taybi Syndrome | MI |
Rena Baek | Framingham | Candace | Scleroderma | CO |
Shay Zukowski | Allston | Gracie | Shwachman Diamond Syndrome | MA |
Shane James | Patient member | SPS Patient | Stiff Person Syndrome | Australia |
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