Yesterday, our team completed the first of two marathons along the Running for Rare Disease journey this year. The Boston Marathon is the super bowl of marathons. The one every marathon runner aspires to tackle. We were lucky enough to…
Yesterday, our team completed the first of two marathons along the Running for Rare Disease journey this year. The Boston Marathon is the super bowl of marathons. The one every marathon runner aspires to tackle. We were lucky enough to…
 On friday I had the great fortune to meet my patient partner Sam, and his parents, Allyson and Nick Buck, in their home in Greenwhich, CT. Allyson has already posted a great summary of Sam’s story. Sam is an amazing little…
Recent Comments