Blog Archives

Erica’s Story: Living with MPS I

I would like to introduce Erica Thiel, my patient partner for the Boston Marathon. It’s been such a privilege to get to know Erica over the past few months, and I really appreciate her willingness to share her story on

Posted in Patient Stories

The Finisher’s Medal

Experienced runners say you learn a lot about yourself when you hit the infamous “wall” while running a marathon. In the weeks leading up to the Newport Marathon on Oct. 14, I tried to prepare mentally for this inevitability. I

Posted in Running Stories

Genzyme’s Rare Disease Day Relay

On February 29, Genzyme employees in Massachusetts celebrated Rare Disease Day by running an Olympic-style torch relay starting at our Framingham Science Center, stopping at our offices in Waltham and Allston, and crossing the finish line just outside of Genzyme

Posted in Uncategorized

Welcome to the Running Archive

Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.