It has been ten days since the horrific events that occurred at the Boston Marathon. On the morning of the marathon as a member of the Running for Rare Diseases Team I was feeling excited about the new connections that we had made with the rare disease community. Many of the patient partners had flown in to watch the marathon and to participate in events in and around the Boston Area. It was amazing to witness the interactions between runner, patient partners and employees that were occurring throughout the weekend.
As I watched the dramatic events of the past week unfold, it made me think what can we do to help those who were most effected by the tragic events surrounding the Boston Marathon? As a member of the Running for Rare Diseases Marathon Team I wanted to remember those that were victims of the evil acts but also help this city heal from this tragedy that unfolded in front of our eyes seemingly on a daily basis. This Friday, along with Amy, another member of the marathon team we are having an event to pay tribute to the victims of the Boston Marathon explosions, while raising funds for the One Boston Fund.
From 6-8 p.m. on Friday April 26 at Towne Stove and Spirits please join us for an evening of remembrance. Towne has generously donated space for this event along with complimentary appetizers (as long as they last). We are asking for a suggested donation of 10 dollars and we will also be having a raffle. Raffle items include 2 tickets to Kenny Chesney at Gillette Stadium, One night stay at the DoubleTree, restaurant gift certificates and more!
For more information and to RSVP please check outÂ https://www.facebook.com/events/506496606080685/