Rare Disease Day Connections

This past February, Emma, a Gaucher Patient, was the guest speaker for the Rare Disease Day events held in Massachusetts. During her visit, Genzyme Employees heard about her Gaucher advocacy project called “My Normal“. Emma developed this program as a kid-friendly platform that encourages children to share their story with others. This week, a blog post on the genzyme rare disease community describes on how the My Normal has become a reality. It’s exciting to hear about how people living with Gaucher disease can share their story and in doing so inspire, connect and empower children around the world who are living with a rare condition. To read more about My Normal please check out the blog post at http://www.genzymerarecommunity.com/blog/%E2%80%9Cmy-normal%E2%80%9D-becomes-reality-national-gaucher-foundation-canada-succeeds-pal-project

Emma & Phil

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Welcome to the Running Archive

Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.