As Rare Disease Day is coming to a close, I wanted to a share a great audio clip that my patient  partner Emma recorded for rare disease day.
https://soundcloud.com/caseyblumen/dear-mom-and-dad-rare-disease-day
Today, I participated in the Rare Disease Day Relay (#GenzymeRelay) here in Massachusetts. The speakers that we had at our different sites were amazing and I was especially moved by the story that our rare diseases community speaker, Blythe Lord, shared with us.
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