Rare Disease Day Reflections

As Rare Disease Day is coming to a close, I wanted to a share a great audio clip that my patient  partner Emma recorded for rare disease day.

https://soundcloud.com/caseyblumen/dear-mom-and-dad-rare-disease-day

Family Portrait

Today, I participated in the Rare Disease Day Relay (#GenzymeRelay) here in Massachusetts. The speakers that we had at our different sites were amazing and I was especially moved by the story that our rare diseases community speaker, Blythe Lord, shared with us.

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Welcome to the Running Archive

Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.