It’s taken me a solid week to come down from my runner’s high and be able to compose myself enough to put my thoughts into words. It’s hard to describe how amazing Marathon weekend was without sounding over-dramatic, so I’ll just leave it at that – amazing.
During our teamÂ dinner the Saturday before the Marathon, Phil used the words “passionate, committed, resilient and strong” to describeÂ the community we’ve built. While those all ring so very true, as I ran lastÂ Monday, I thought of a fewÂ more key ones that I think Phil forgot:
We areÂ proud. “We” being the Genzyme Boston Marathon Team, to wear our company’s name, NORD’s logo and slogan and our patient partner’s name/photo on our jerseys. “We” being the Running for Rare Diseases community, to come togetherÂ and give a voice toÂ diseases that aren’t always heard. And “we” being the great city of Boston, which many of us proudly get to call home. On a personal level,Â I also felt a lot of pride throughout those 26.2 miles. Running through my hometown, past my old high school and elementary school, past the street my mom grew up on, and past the bar I stood outside of during the 2013 Boston Marathon, cheering on the team and thinking not in a million years would I ever be able to accomplish this feat.
We areÂ supportive.Â Supportive ofÂ each otherÂ as runners, riding out to Hopkinton, all with drastically different goals given we have a wide variety of running levels, speed and experience on the team, but also allÂ with one collective goal.Â And weÂ are supported by so many along the way. Our group of over 100 atÂ Mile 14 erupting as you ran through. Friends, family and colleagues scattered throughout the course, giving you that extra push you need to keep going. And the (literally) millions of random strangers lining the streets, providing Â encouragement, high fives, amusing signs, orange slices and anything else you could possibly need. My underarms are forever indebted to the woman handing out Popsicle sticks of Vaseline. Â And while it’s not all about the money, I think it’s worth mentioning that ourÂ community is certainly financially supportive too – collectively raising over $100,000 for theÂ Genzyme/NORD NIH Undiagnosed Diseases Fund!
Lastly, we areÂ grateful. To be a part of this community. For the connections and friendships we’ve made over the past few months. For our patient partners sharing their stories with us. To be healthy enough to make it to the starting line. To run a safe race. And to have been been a part of taking back ourÂ finish line.
Thank you all for letting me be a part of thisÂ journey.Â They are memories and feelingsÂ I’ll never forget!