I am so honored and excited to be running in the 2016 Boston Marathon to raise money for NORD. MyÂ patient partner this year is Sarah who is diagnosed with fibromuscular dysplasia. AsÂ weâ€™ve gotten to know each other, Iâ€™ve been inspired by her strength, resilience, and positive attitude.Â February 29 was Rare Disease Day. Sarah went to Washington, D.C. to represent her fellow patients and all those impacted by rare disease, despite havingÂ challenges due to her illness. To learn more about FMD, you can read up about it atÂ http://rarediseases.org/rare-diseases/fibromuscular-dysplasia or on http://www.fmdchat.net.
Training and fundraising this spring have been challenging due to unexpected stresses. Whenever I thinkÂ about skipping a run or giving up, I think of Sarah and how she is so amazing and resilient. She sent meÂ the quoteÂ below about being happy. Nothing could make me happier than having hosted a painting partyÂ with new and old friends. As I was preparing to run my longest training run ever a couple of weeks ago (28 miles onÂ the Boston course), I was happy and grateful to be able to do this. Thoughts of Sarahâ€™s resilience andÂ strength kept me going.