When I think or rare disorders one thing that pops in my head is Kevin Bacon. Â It’s an odd thought, but if you’ve heard of him, then you’ve probably heard of the game “6 degrees of Keven Bacon.” Â If you haven’t heard of this game the gist of it is, think ofÂ any actor to see how closely they link with Mr. Bacon. Â And this is how I think about rare disorders. Â They’re rare but I bet you know someone with one…and if you don’t, you definitely know someone who knows someone with a rare disorder.
So now that, that’s out of the way, on to my picture above. Â In a few short weeks, I will be running 26.2 miles. I am running for those with rare and undiagnosed disorders. Â If you know someone…or know someone that knows someone with a rare or undiagnosed disorder, Â that you would like to me to run in honor of, make a donation and I will run a mile….or .2 for them. Â At the race i will have a 26 tattoos of on my arm (don’t worry it’s only temporary), and let’s not forget about that .2 Â So there are 26.2 slots available.
Thank you so much, to all who have donated… and my future donators 🙂
As a mom of a “rare” child your running is a blessing to us all.
Excellent idea Nicole!!!
You’re such an inspiration Nicole. Keep it up!