Hayden & Tanner presenting to their class mates on Rare Disease Day. Both recognized by the TGen Foundation for their efforts to raise awareness. Way to go Hayden & Tanner!  

What a great weekend meeting my patient partners for this year’s marathon team. Hayden and Tanner invited me to meet them this weekend to run on their T-Gen Running for Kids with Rare Diseases team at the P.F. Chang Rock-n-Roll…