Blog Archives

From Skepticism to One Awe Inspiring Experience…

On January 20, 2014, a young girl, just turned 18 years old, received an email. That email was from NORD (the national organization for rare disorders) and stated that Genzyme was looking for patient partners for the Boston Marathon. The

Posted in Patient Stories

Welcome to the Running Archive

Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.