The Running for Rare Diseases Team is seeking passionate community members to join our 2014 Boston Marathon Team as patient partners! Patient Partner Testimony: For those of you who don’t know me, my name is Kristin. I’m an avid runner…
The Running for Rare Diseases Team is seeking passionate community members to join our 2014 Boston Marathon Team as patient partners! Patient Partner Testimony: For those of you who don’t know me, my name is Kristin. I’m an avid runner…
My name is Kristin. I’m an avid runner and also a patient living with a rare disorder called homocystinuria (HCU).  My journey started 34 years ago when I became the first person in the state of Maryland to be diagnosed…
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