Blog Archives

WANTED: Passionate Patient Partners!

The Running for Rare Diseases Team is seeking passionate community members to join our 2014 Boston Marathon Team as patient partners! Patient Partner Testimony: For those of you who don’t know me, my name is Kristin. I’m an avid runner

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Journey of a HCU Runner – Kristin

For those of you that don’t know me, my name is Kristin.  I’m an avid runner, a patient living with a rare disorder called Homocystinuria (HCU), and I’m beyond thrilled to be part of this year’s Boston Marathon Team! I can’t believe in

Posted in Patient Stories

Where there’s a WILL, there’s a way!

The following blog post was written by my patient partner’s father, Chris,  who completed his first marathon this past year.  His son, Will, was born with the same rare disorder I have – Homocystinuria (HCU).  My two 20 mile training

Posted in Patient Stories

Journey of a Patient Partner – Kristin

My name is Kristin.  I’m an avid runner and also a patient living with a rare disorder called homocystinuria (HCU).   My journey started 34 years ago when I became the first person in the state of Maryland to be diagnosed

Posted in Uncategorized

Welcome to the Running Archive

Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.