For the 2nd year, the Genzyme marathon team members haveÂ Â partnered withÂ rare disease patients.Â Â Four of the partnerships are described in this post.Â
Jay is partnered with Rachel, a Canavan Disease patient who we had the honor of meeting at a fundraising event last year.Â Â Rachel also came to the marathon to cheer on the Genzyme team.
Angela is partnered with Monique, a Pompe Disease patient.Â Â Monique is actively involved in the patient community and publishes her daily blog about her life withÂ Pompe Disease. Monique recently visited Genzyme.Â Â You can read more about it here.Â Â Â
Phil is partnered with Rebecca for the 2nd year.Â Â Like Monique, Rebecca has Pompe Disease.Â
Phil and RebeccaÂ met during a visit to Genzyme in 2010 and have had a special relationship ever since.Â Rebecca posted about her marathon day last year.