For the 2nd year, the Genzyme marathon team members have partnered with rare disease patients. Four of the partnerships are described in this post.
Jay is partnered with Rachel, a Canavan Disease patient who we had the honor of meeting at a fundraising event last year. Rachel also came to the marathon to cheer on the Genzyme team.
Angela is partnered with Monique, a Pompe Disease patient. Monique is actively involved in the patient community and publishes her daily blog about her life with Pompe Disease. Monique recently visited Genzyme. You can read more about it here.
Phil is partnered with Rebecca for the 2nd year. Like Monique, Rebecca has Pompe Disease.
Phil and Rebecca met during a visit to Genzyme in 2010 and have had a special relationship ever since. Rebecca posted about her marathon day last year.