On April 16, 2016, the Running4Rare team came together for the first time as an independent entity working with the National Organization for Rare Disorders (NORD) and the Undiagnosed Diseases Network (UDN). Â It was a very special evening for all…
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Step change or Outlier
In 2015, as an experiment, the Running for Rare Diseases (Running4Rare) board decided to add the Providence Marathon and Half Marathon as an option to inspire the involvement of more employees. Incredibly, not only were more employees interested, so were…
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Tapering, Butterflies and Phantom Pains – What fun….. (edited repost from 2011)
It’s about a two weeks before race day and all of the team members are completing their first week of tapering. One would think that getting more rest and running less miles would make a runner feel great. The truth is tapering isn’t…
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My Boston Marathon Goal: Let’s make it a Personal Best…But not a PR!
On April 21, I will be running my 8th Boston Marathon and my 17th marathon overall. I started in 2007, the year of the nor’easter that had the press asking if it could possibly be canceled due to the heavy…
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Living a Happy Life – Sam Berns
On Friday, we lost Sam Berns,  a remarkable young man to Progeria . Sam, age 17,  was diagnosed at 22 months of age with Progeria, a rare, fatal genetic condition characterized by an appearance of accelerated aging in children.  Children with…
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We Did It!!!
Team Wylder Nation Race Report: Ghost Train 100 Mile Endurance Race 10/26/13 – 9:00 AM From the top going clockwise…Kaitlyn, Lily, Riley, Amber, Faith, Quinn, Trek, Jacob & Wylder (center) I got up at 5:00 AM and went through my typical…
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