On Friday, we lostÂ Sam Berns, Â a remarkable young man to Progeria .Â Sam, age 17, Â was diagnosed at 22 months of age with Progeria, a rare, fatal genetic condition characterized by an appearance of accelerated aging in children.Â Â Children with Progeria (about 350 worldwide) live an average of 13 years.
You may haveÂ heard of Sam’s story recently asÂ HBO Documentaries broadcasted the story of Sam Berns inÂ Life According to SamÂ Â last fall.Â HeÂ also made an appearance onÂ the Katie Couric ShowÂ and had a special relationship withÂ Robert Kraft and the Â New England Patriots.Â The Patriots had even invitedÂ Sam to be an honorary captain forÂ last nightâ€™s divisional-round playoff game against the Indianapolis Colts.Â Â They held a moment of silence at the start of the game in his honor.
Sam shared his philosophy for living a happy lifeÂ atÂ TEDxMidAtlanticÂ in October 2013 which I wanted to share with this community.Â Â Sam had wisdom far beyond his short life and an incredible human spirit.
Thank you Sam for your courage and inspiration.Â Â You will surely be missed!!