Marathon Monday is almost here!!Â As you know Phil Madera will be running in honor of our little Wylder JamesÂ who battled Niemann Pick A disease.Â Â This is a beautiful reminderÂ the GOODNESS in the World that WylderÂ taught us is out there everyday.Â And this is continuing to help bring our Rare Disease community together … uniting more and more to raise awareness to make a difference for kiddos like yoursÂ battling rare genetic disease.
To show the team our love and support forÂ there efforts, and to remindÂ Phil our Warrior WylderÂ James will be with him in spirit every step of the way … we have come up with a Warrior Paint Campaign. The goal is to receive 1,000 photos of YOU in your WARRIOR paint by next Monday!!!
It’s simple.Â Dabble a bit of Warrior Paint (aka. face paint, or sunscreen) onto your cheeks and the cheeks of those you love and send them our way.Â Send to me at email@example.comÂ or post to the WN FB Page at https://www.facebook.com/WylderjamesÂ As the photos start to come in, I am going to create a “PAGE”” on Wylder’s website (HERE) where I will archive all the photos we receive of you loveies in your paint.
After sending Phil a few photos of WylderÂ months back he selected Wylder’sÂ famous Warrior Paint photo to wear over his heart on this very special upcoming Marathon Monday.Â I will be on the sidelines with my mom, some genzymeÂ friends, Phil’s family, and many of youÂ who are coming out to showÂ your support.Â We will be draped on our Wylder Nation gear with our painted faces for a day of cheering!
Let us come together and paint the town WARRIOR style!Â Over the next week please get together with your friends, family, co-workers, church groups, neighborhood kidsÂ and show Phil and the teamÂ some LOVE …. WARRIOR Style. Get together, have some laughs, paint those beautiful faces and show your support for them and the WARRIORS in your lives.Â Â We are starting the campaignÂ off right now with Wylder’s dog Maddie ….
The goal is 1,000 pictures in one week!Â Â Please share, share, share that your care. Include pictures of YOUR rare disease Warrior’s and those who love them most.Â Â May we all be reminded how many very special Warriors there are battling rare disease and how loved they all are.Â Please share thisÂ post and this campaignÂ and your pictsÂ on facebook, twitter, instagramÂ all week.Â Let us all come together… reminding Phil and the team Â the strength of our Warrior WylderÂ James andÂ the support system around them and bring on the photos!!!Â Thank you, thank you, thank you to everyone who donated and continues to donate to Phil and his amazing cause for NORD (HERE) and all of you that are going to send Warrior paint photos are way.
The teamÂ will most certainly feel our strength, love and support through our photos to him andÂ I know you, our sweet Wylder, will be smiling down on us when you see these photos coming in and Phil on his run thinking of YOU.Â WylderÂ we know all things are possible because of you.Â You are loved little one, so loved!Â See you in our dreams Warrior.Â xoxo
Warrior Paint Campaign
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[…] hour and a half, Mile 14 was filled with cheers, hugs and words of encouragement (as well as much warrior paint!) as each of the Genzyme Marathon Team passed by â€“ some even stopping to visit with their patient […]