Blog Archives

Warrior Paint Campaign

Marathon Monday is almost here!!  As you know Phil Madera will be running in honor of our little Wylder James who battled Niemann Pick A disease.  This is a beautiful reminder the GOODNESS in the World that Wylder taught us is out there everyday. 

Posted in Uncategorized

Warrior Code Of Honor

Our family came across this beautiful definition of a WARRIOR and thought it would be perfectly fitting to share here with the Running for Rare Disease Warrior team, and the Warrior’s they are running for. For YOU, the 30 million

Posted in Patient Stories

Meet Wylder

Congratulations TEAM GENZYME “Running for Rare Disease” … you have just had Wylder the Whale adopted for your team by Wylder Nation.  Wylder is a 7 year old male humpback whale that was identified off the coast of Maui in

Posted in Patient Stories

Welcome to the Running Archive

Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.