Writing down your thoughts has to be one of the hardest things to doâ€¦.
Those that know me even in the slightest bit know that I truly enjoy chatting with people. So, writing something for the Running For Rare blog should be easy, right?
Can I tell you the number of times that I started writing this post only to trash it or leave it? And it doesnâ€™t stop with bloggingâ€¦.Iâ€™m not very good at commenting on Facebook posts or on Instagram (and donâ€™t even ask me about SnapChatâ€¦.I just donâ€™t get it…I always thought I was cool and with it, but maybe my age is catching up with me!).
Itâ€™s because I cannot express how much this team means to meâ€¦..
I love how this team brings together so many people, stories, and hopesâ€¦.and I in a very small way get to be a part of it.
I am running the TCS NYC Marathon (in 2 weeks!) and I have the honor of running it for Claire. Yâ€™all have to meet Claire because she is just amazing and awesome! She has unbelievable support from her family and friends (ask Andrew who met Claireâ€™s Uncle!), to whom I cannot adequately express my thanksâ€¦
What can I say about this partnership? This is where I get stuck because how can I express this in wordsâ€¦.I just canâ€™tâ€¦.
Thank you NORD, UDN, Running for Rare, and Claire…you all give me purposeâ€¦.
I stumbled upon working in rare diseases as a graduate student…but I sought out to be part of this team!