Remembering this day last year, How time moves very quickly.

As i sit here (in Waterford,Ireland) on a quiet Tuesday night, I remember this time last year which was quite the opposite. I was luck enough to finish he marathon and was back at my hotel when terror struck at 2:50 local

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April 15, 2014 – A reflection and why we are running together

It was 1 year ago, today, on April 15, 2013 that the lives of so many people were dramatically changed forever. In the aftermath of the Boston Marathon bombing 4 people had lost their lives, and many others were seriously

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Top 5 Songs on My Boston Marathon Playlist (Mental Taper, Part 1)

During the last 2-3 weeks before the marathon, there’s not much we runners can do to improve our physical readiness for the big day. We need to run the optimal amount, neither too much nor too little, to ensure we’re

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My 20 Mile Odyssey…

I knew early on in the year that I would miss the March 21st charity run, as I would be away with my boys in New York on that same weekend. While we had a great time seeing the sights

Posted in Running Stories

P.S. – My mind took a walk

the race is 5 races and in my opinion begins at mile 16 with(depending on who you talk to) the 1st of, and again, in my opinion the most difficult of the 4 ‘Newton Hills’. Part 1 is a total

Posted in Running Stories

Gina’s Story

I have the honor and distinct pleasure to represent Team Genzyme/Running for Rare Diseases in the 2014 Boston marathon.  The focus on this year’s race is heightened for obvious reasons, and I hope that some of that attention lands on

Posted in Patient Stories

Storytellers Wanted

The GRT Infographic (a type of story) tells us that “23 patient stories so far” have been shared on the Running for Rare Diseases blog. To mention just a few, we’ve been exposed to blogs, like Erica’s Rarely Defined, watched

Posted in Patient Stories

Tapering, Butterflies and Phantom Pains – What fun….. (edited repost from 2011)

It’s about a two weeks before race day and all of the team members are completing their first week of tapering.  One would think that getting more rest and running less miles would make a runner feel great.  The truth is tapering isn’t

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Jessi’s run, Ben’s Dream; our Day – MPS Awareness

I first met the Siedman Family in May 2007, while in MA for a MPS I patient panel at Genzyme. After the MPS I Awareness day events in 2007 I, went and stayed with Jenn and her family for a

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My Boston Marathon Goal: Let’s make it a Personal Best…But not a PR!

On April 21, I will be running my 8th Boston Marathon and my 17th marathon overall. I started in 2007, the year of the nor’easter that had the press asking if it could possibly be canceled due to the heavy

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Welcome to the Running Archive

Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.