A video of the runners and patients that participated in the 2012 Running for Rare Diseases Boston Marathon event is now available: It is also highlighted on the Genzyme home page.
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It’s Just A …..
I had lunch on Thursday with a very special young man. At only 20 years of age, Christian recently had stents implanted around his heart to unclog two major arteries. Christian is inflicted with familial hypercholesterolemia (FH); a genetic disorder…
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My Story 2012 ‘All In’
Arriving in Boston 2012 was smooth, compared to the previous year stuck on the west coast wondering if I’d make Boston in time. I’d trained hard and was over the fear of the 26.2 miles, I had a very pleasing…
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Boston Marathon 2012
Below is a slideshow of the Running for Rare Diseases team from Marathon day. Click on a photo to jump to the full gallery.
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Running for FH
My name is Christian Jacobs. I am 20 years old and live outside of Columbus Ohio. I come from a large family with four sisters and two brothers. I am currently a sophomore in college studying nursing. When I’m not…
Genzyme’s Rare Disease Day Relay
On February 29, Genzyme employees in Massachusetts celebrated Rare Disease Day by running an Olympic-style torch relay starting at our Framingham Science Center, stopping at our offices in Waltham and Allston, and crossing the finish line just outside of Genzyme…
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