After the original running4rare.org site was migrated to NORD’s runningforrare.org, the site was redesigned and didn’t reincorporate the fully history of the blog the original Sanofi-Genzyme running team blog content, which includes lots of heartfelt memories and thoughts by the…

A belated note to the blog to let you know that all the team runners and patient families are safe. Each of us was overwhelmed when we returned home by the concerned calls and messages reaching out to us from…

If you plan on watching the Boston Marathon on Monday, April 15, be sure to cheer for the 17 members of the “Running for Rare Diseases” team who are running for the National Organization for Rare Disorders (NORD). Runners have…

The photo gallery from yesterday’s rare disease relay has been uploaded. While there is more to be said about the wonderful events of the day, sometimes a picture is worth a 1000 words. The gallery has also been posted to…

You can track the progress of Thursday’s rare disease relay between Framingham and Cambridge by clicking on the link below. It will also work on iphone, ipad, or droid devices via an app. http://www.myathletelive.com/storage/races/2013/RDDR/index.html Photos from last year’s relay are…

The 2013 Running for Rare Diseases marathon team will soon kick off its fundraising efforts and patient events leading up to the Boston Marathon on Monday April 15th. There are a number of ways you can stay connected to the…

A video of the runners and patients that participated in the 2012 Running for Rare Diseases Boston Marathon event is now available: It is also highlighted on the Genzyme home page.