The video below, created in 2008 as part of the 25h anniversary of the National Organization of Rare Disorders (NORD), provides background on the organization and its mission. Patient partner Donnie, who has Rubinstein-Taybi Syndrome, is featured at 4:05.
Welcome to the Running Archive
Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.
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- Light at the End of the Tunnel – boston.jackprior.org on Marathon Update
- Andrew Scholte on The Blog Returns!
- Lauren-Emily Eastham on Brianna’s Story – Hereditary Spastic Paraplegia
- Lauren-Emily Eastham on Brianna’s Story – Hereditary Spastic Paraplegia
- Kevin White on 10 miles and mommy guilt.
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