April is almost here and I couldn’t be more excited! Soon I will be at the Boston Marathon cheering on my running partner, Lisa V! She’s there today participating in the Charity Run. Many of you probably don’t know that…
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Seizures Won’t Stop Me
Posted in Patient Stories, Uncategorized Tagged with: boston marathon, Charity run, Lindy, Lisa, MLD
Living with MLD
Hi, my name is Lindy and I’m a patient partner for this year’s Genzyme Running for Rare Disease Team. Lisa Valaika is my running partner.  I’d like to share with you what it’s like living with a rare…
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Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.
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