It’s hard to believe as I sit here in Oregon experiencing a rare 80 degree day that one week ago today I was at milepost 14.5 in pouring rain experiencing my first marathon and waiting for my partner Lisa to come…
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Wow! How do I say thank you!
Posted in Patient Stories, Running Stories, Uncategorized Tagged with: #running4rare, awareness, boston marathon, genzyme, Lindy, Lisa, MLDfoundation, patient partner, runningforraredisease, runningforrarediseases
Seizures Won’t Stop Me
April is almost here and I couldn’t be more excited! Soon I will be at the Boston Marathon cheering on my running partner, Lisa V! She’s there today participating in the Charity Run. Many of you probably don’t know that…
Posted in Patient Stories, Uncategorized Tagged with: boston marathon, Charity run, Lindy, Lisa, MLD
Living with MLD
Hi, my name is Lindy and I’m a patient partner for this year’s Genzyme Running for Rare Disease Team. Lisa Valaika is my running partner.  I’d like to share with you what it’s like living with a rare…
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Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.
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