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Wow! How do I say thank you!

Posted on by Lindy Suhr — 1 Comment ↓

It’s hard to believe as I sit here in Oregon experiencing a rare 80 degree day that one week ago today I was at milepost 14.5 in pouring rain experiencing my first marathon and waiting for my partner Lisa to come…

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Posted in Patient Stories, Running Stories, Uncategorized Tagged with: , , , , , , , , ,

My Promise

Posted on by Melissa Halstead — No Comments ↓

A year and a half ago I joined Genzyme.  I had heard of the company and knew the name but before I interviewed with them I didn’t know their mission and the passion people have to find ways to help…

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Posted in Running Stories Tagged with: , , , , , , ,

Why Rare Disease Day Matters

Posted on by Jessi — 2 Comments ↓

Last holiday season, I organized a gift-wrapping fundraiser for the National Organization for Rare Disorders (NORD) at a bookstore. One of my “customers” jokingly said, “Rare diseases? Right, because you wouldn’t want to raise funds for any of those common…

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Posted in Uncategorized Tagged with: , , , ,

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Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.