Watch the video story about Running for Rare Diseases Team coming to Paris. For over two years now, Emma and I have pursued a “We Run Together†campaign, running many miles together virtually. This includes during last year’s Boston Marathon,…
Blog Archives
#WeRunTogether from Boston to Paris
Posted in Running Stories Tagged with: Paris Marathon, patient partner, providencehalfmarathon, running, runningforrarediseases, weruntogether
Wow! How do I say thank you!
It’s hard to believe as I sit here in Oregon experiencing a rare 80 degree day that one week ago today I was at milepost 14.5 in pouring rain experiencing my first marathon and waiting for my partner Lisa to come…
Posted in Patient Stories, Running Stories, Uncategorized Tagged with: #running4rare, awareness, boston marathon, genzyme, Lindy, Lisa, MLDfoundation, patient partner, runningforraredisease, runningforrarediseases
Nerves
This is not about running. I don’t know how many times we’ve said that, and I feel like I am a prime example, because there’s no way I would do this if it was about running. I do it because…
Posted in Running Stories Tagged with: #running4rare, awareness, boston marathon, Marathon, marathon monday, patient partner, rare diseases, running, runningforrarediseases, training
“Marchâ€-ing Through Together
While I often joke that the reason I am running the Boston Marathon is so I can buy one of the jackets, the real reason is I wanted to do that one final thing I had yet to do as…
Posted in Patient Stories Tagged with: #running4rare, awareness, boston marathon, Fundraise, fundraising, Marathon, patient partner, runningforrarediseases
Sam Vs. VWM
Andrew Hegedus is Sam’s running partner. Here is our story. Sam is happy 4-year old, full of life, quick to laugh and smile. He has a great sense of humor. He is loving, affectionate, grateful and appreciates the little things…
Posted in Patient Stories, Uncategorized Tagged with: rare disease, runningforrarediseases, SamvsVWM, VWM
Snow Run
I hate the cold and am not a fan of snow. Hence my getting a membership to Boston University’s FitRec, which features an indoor track. That is where I plan to do the vast majority of my training this winter.…
Posted in Running Stories Tagged with: boston marathon, running, runningforrarediseases, training, winter
Trying on the Jersey (aka Singlet)
This past August I saw an announcement on our intranet for Genzyme Running Jerseys. Run a race and get a jersey. I like to run and have been participating in the Running for Rare Disease Relay for a few years…
Posted in Running Stories Tagged with: gonnaflynow, patient partner, providencehalfmarathon, runnerpartner, running, runningforrarediseases
Confession
So, I took the Holidays off from running. <Eek!> That’s a whole 2 months off from running (well, a part from a few fun 5Ks…which they don’t really count because is it a training run if you are in costume…
Posted in Uncategorized Tagged with: boston marathon, cold weather, let's do this, running, runningforrarediseases, training, winter
My Promise
A year and a half ago I joined Genzyme. I had heard of the company and knew the name but before I interviewed with them I didn’t know their mission and the passion people have to find ways to help…
Posted in Running Stories Tagged with: awareness, boston marathon, fundraising, genzyme, patient partner, rare disease, runningforrarediseases, winter
The Most Selfish Thing I’ve Ever Done
This is a letter I wrote to my family and friends (obviously) and decided to share on my personal blog as well as here because I think many others are feeling similar to me – anxious, excited, terrified – at…
Posted in Running Stories, Uncategorized Tagged with: awareness, boston marathon, Fundraise, fundraising, Marathon, marathon monday, partner, patient, patient partner, rare disease, rare diseases, running, runningforrarediseases, training, winter
Welcome to the Running Archive
Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.
Recent Comments