The Running for Rare Diseases online auction is NOW LIVE and will close at 12:59:59 on Friday, May 1, 2015. Access the auction here: http://auction.runningforrarediseases.org/ There are already approximately 40 items – everything from original artwork and Patriot’s tickets to restaurant and…
Blog Archives
Nerves
This is not about running. I don’t know how many times we’ve said that, and I feel like I am a prime example, because there’s no way I would do this if it was about running. I do it because…
Posted in Running Stories Tagged with: #running4rare, awareness, boston marathon, Marathon, marathon monday, patient partner, rare diseases, running, runningforrarediseases, training
“Marchâ€-ing Through Together
While I often joke that the reason I am running the Boston Marathon is so I can buy one of the jackets, the real reason is I wanted to do that one final thing I had yet to do as…
Posted in Patient Stories Tagged with: #running4rare, awareness, boston marathon, Fundraise, fundraising, Marathon, patient partner, runningforrarediseases
Snow Run
I hate the cold and am not a fan of snow. Hence my getting a membership to Boston University’s FitRec, which features an indoor track. That is where I plan to do the vast majority of my training this winter.…
Posted in Running Stories Tagged with: boston marathon, running, runningforrarediseases, training, winter
The Most Selfish Thing I’ve Ever Done
This is a letter I wrote to my family and friends (obviously) and decided to share on my personal blog as well as here because I think many others are feeling similar to me – anxious, excited, terrified – at…
Posted in Running Stories, Uncategorized Tagged with: awareness, boston marathon, Fundraise, fundraising, Marathon, marathon monday, partner, patient, patient partner, rare disease, rare diseases, running, runningforrarediseases, training, winter
Wanted: Passionate Patient Partners
All of us on the Running for Rare Diseases Marathon Team Board are getting really excited about the new season. For weeks now we have been pouring over the applications of all the runners who want to join us for…
Posted in Patient Stories Tagged with: awareness, boston marathon, fundraising, Marathon, partner, patient, patient partner, rare disease, rare diseases, running, runningforrarediseases
This is What it’s All About
The majority of our 2014 Running for Rare Diseases Boston Marathon Team ran from the Boston Marathon starting line in Hopkinton through mile 21 near Boston College on Saturday. It was the last long training run of the season –…
Posted in Patient Stories, Running Stories Tagged with: awareness, boston marathon, fun, marathon monday, patient partner, rare diseases, running, runningforrarediseases, training
Optimism Despite Tragedy: Words from Genzyme’s 2013 Boston Marathon Team
The following is a story that Jessi and I worked on for Genzyme’s intranet, to share our community’s story with everyone at our company. We thought our blog readers may like to read it, too. As you’ll see, it is…
Posted in Patient Stories, Running Stories
Welcome to the Running Archive
Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.
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