Blog Archives

RFRD Online Auction is Up!

The Running for Rare Diseases online auction is NOW LIVE and will close at 12:59:59 on Friday, May 1, 2015. Access the auction here: There are already approximately 40 items – everything from original artwork and Patriot’s tickets to restaurant and

Posted in Patient Stories, Running Stories


This is not about running. I don’t know how many times we’ve said that, and I feel like I am a prime example, because there’s no way I would do this if it was about running. I do it because

Posted in Running Stories Tagged with: , , , , , , , , ,

“March”-ing Through Together

While I often joke that the reason I am running the Boston Marathon is so I can buy one of the jackets, the real reason is I wanted to do that one final thing I had yet to do as

Posted in Patient Stories Tagged with: , , , , , , ,

Snow Run

I hate the cold and am not a fan of snow. Hence my getting a membership to Boston University’s FitRec, which features an indoor track. That is where I plan to do the vast majority of my training this winter.

Posted in Running Stories Tagged with: , , , ,

The Most Selfish Thing I’ve Ever Done

This is a letter I wrote to my family and friends (obviously) and decided to share on my personal blog as well as here because I think many others are feeling similar to me – anxious, excited, terrified – at

Posted in Running Stories, Uncategorized Tagged with: , , , , , , , , , , , , , ,

Wanted: Passionate Patient Partners

All of us on the Running for Rare Diseases Marathon Team Board are getting really excited about the new season. For weeks now we have been pouring over the applications of all the runners who want to join us for

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This is What it’s All About

The majority of our 2014 Running for Rare Diseases Boston Marathon Team ran from the Boston Marathon starting line in Hopkinton through mile 21 near Boston College on Saturday. It was the last long training run of the season –

Posted in Patient Stories, Running Stories Tagged with: , , , , , , , ,

Optimism Despite Tragedy: Words from Genzyme’s 2013 Boston Marathon Team

The following is a story that Jessi and I worked on for Genzyme’s intranet, to share our community’s story with everyone at our company. We thought our blog readers may like to read it, too. As you’ll see, it is

Posted in Patient Stories, Running Stories

Welcome to the Running Archive

Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.