This is a letter I wrote to my family and friends (obviously) and decided to share on my personal blog as well as here because I think many others are feeling similar to me – anxious, excited, terrified – at…
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The Most Selfish Thing I’ve Ever Done
Posted in Running Stories, Uncategorized Tagged with: awareness, boston marathon, Fundraise, fundraising, Marathon, marathon monday, partner, patient, patient partner, rare disease, rare diseases, running, runningforrarediseases, training, winter
Wanted: Passionate Patient Partners
All of us on the Running for Rare Diseases Marathon Team Board are getting really excited about the new season. For weeks now we have been pouring over the applications of all the runners who want to join us for…
Posted in Patient Stories Tagged with: awareness, boston marathon, fundraising, Marathon, partner, patient, patient partner, rare disease, rare diseases, running, runningforrarediseases
You Can’t Do It Alone
I recently took a week off to travel up the California coast and visit family and friends in San Francisco. My training plan had me running 13 miles that weekend, so I convinced my best friend Liz, who lives out…
Posted in Patient Stories, Running Stories Tagged with: boston marathon, partner, patient, patient partner, rare disease, rare disease day, running, Shwachman Diamond Syndrome, Tay-Sachs disease
Welcome to the Running Archive
Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.
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