This is not about running. I don’t know how many times we’ve said that, and I feel like I am a prime example, because there’s no way I would do this if it was about running. I do it because…
Blog Archives
Nerves
Posted in Running Stories Tagged with: #running4rare, awareness, boston marathon, Marathon, marathon monday, patient partner, rare diseases, running, runningforrarediseases, training
“Marchâ€-ing Through Together
While I often joke that the reason I am running the Boston Marathon is so I can buy one of the jackets, the real reason is I wanted to do that one final thing I had yet to do as…
Posted in Patient Stories Tagged with: #running4rare, awareness, boston marathon, Fundraise, fundraising, Marathon, patient partner, runningforrarediseases
Overcoming the February Funk
I feel like a broken record complaining about the snow. But for the past 6 weeks, it’s all anyone in Boston has talked about. And as ridiculous as it might sound to complain about something as basic as the weather,…
Posted in Running Stories Tagged with: #running4rare, awareness, boston marathon, Marathon, Niemann Pick, patient partner, providence marathon, rare disease day, rare diseases, relay, running, running for rare diseases, training
The Most Selfish Thing I’ve Ever Done
This is a letter I wrote to my family and friends (obviously) and decided to share on my personal blog as well as here because I think many others are feeling similar to me – anxious, excited, terrified – at…
Posted in Running Stories, Uncategorized Tagged with: awareness, boston marathon, Fundraise, fundraising, Marathon, marathon monday, partner, patient, patient partner, rare disease, rare diseases, running, runningforrarediseases, training, winter
Wanted: Passionate Patient Partners
All of us on the Running for Rare Diseases Marathon Team Board are getting really excited about the new season. For weeks now we have been pouring over the applications of all the runners who want to join us for…
Posted in Patient Stories Tagged with: awareness, boston marathon, fundraising, Marathon, partner, patient, patient partner, rare disease, rare diseases, running, runningforrarediseases
I am running the 2014 Boston Marathon.
That sentence still doesn’t seem real to me. I’m not sure when exactly it will sink in – maybe at the starting line? Running a marathon is something I never in a million years thought I’d be able to do…
Posted in Running Stories, Uncategorized Tagged with: boston marathon, Marathon, marathon monday, patient partner, rare disease day, rare diseases, run, running, runningforrarediseases, training
Welcome to the Running Archive
Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.
Recent Comments