Watch the video story about Running for Rare Diseases Team coming to Paris. For over two years now, Emma and I have pursued a “We Run Together†campaign, running many miles together virtually. This includes during last year’s Boston Marathon,…
Blog Archives
#WeRunTogether from Boston to Paris
Posted in Running Stories Tagged with: Paris Marathon, patient partner, providencehalfmarathon, running, runningforrarediseases, weruntogether
Nerves
This is not about running. I don’t know how many times we’ve said that, and I feel like I am a prime example, because there’s no way I would do this if it was about running. I do it because…
Posted in Running Stories Tagged with: #running4rare, awareness, boston marathon, Marathon, marathon monday, patient partner, rare diseases, running, runningforrarediseases, training
Overcoming the February Funk
I feel like a broken record complaining about the snow. But for the past 6 weeks, it’s all anyone in Boston has talked about. And as ridiculous as it might sound to complain about something as basic as the weather,…
Posted in Running Stories Tagged with: #running4rare, awareness, boston marathon, Marathon, Niemann Pick, patient partner, providence marathon, rare disease day, rare diseases, relay, running, running for rare diseases, training
Snow shoes…not snowshoes
On our first weekly team call last Wednesday I polled the team for some advice on running in the snow, something that I had never done before. I figured who better to ask than a group of runners from Boston?!?…
Snow Run
I hate the cold and am not a fan of snow. Hence my getting a membership to Boston University’s FitRec, which features an indoor track. That is where I plan to do the vast majority of my training this winter.…
Posted in Running Stories Tagged with: boston marathon, running, runningforrarediseases, training, winter
Trying on the Jersey (aka Singlet)
This past August I saw an announcement on our intranet for Genzyme Running Jerseys. Run a race and get a jersey. I like to run and have been participating in the Running for Rare Disease Relay for a few years…
Posted in Running Stories Tagged with: gonnaflynow, patient partner, providencehalfmarathon, runnerpartner, running, runningforrarediseases
Confession
So, I took the Holidays off from running. <Eek!> That’s a whole 2 months off from running (well, a part from a few fun 5Ks…which they don’t really count because is it a training run if you are in costume…
Posted in Uncategorized Tagged with: boston marathon, cold weather, let's do this, running, runningforrarediseases, training, winter
The Most Selfish Thing I’ve Ever Done
This is a letter I wrote to my family and friends (obviously) and decided to share on my personal blog as well as here because I think many others are feeling similar to me – anxious, excited, terrified – at…
Posted in Running Stories, Uncategorized Tagged with: awareness, boston marathon, Fundraise, fundraising, Marathon, marathon monday, partner, patient, patient partner, rare disease, rare diseases, running, runningforrarediseases, training, winter
Wanted: Passionate Patient Partners
All of us on the Running for Rare Diseases Marathon Team Board are getting really excited about the new season. For weeks now we have been pouring over the applications of all the runners who want to join us for…
Posted in Patient Stories Tagged with: awareness, boston marathon, fundraising, Marathon, partner, patient, patient partner, rare disease, rare diseases, running, runningforrarediseases
This is What it’s All About
The majority of our 2014 Running for Rare Diseases Boston Marathon Team ran from the Boston Marathon starting line in Hopkinton through mile 21 near Boston College on Saturday. It was the last long training run of the season –…
Posted in Patient Stories, Running Stories Tagged with: awareness, boston marathon, fun, marathon monday, patient partner, rare diseases, running, runningforrarediseases, training
Welcome to the Running Archive
Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.
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