Rare Disease Day 2/29/12

Genzyme will be hosting a very special event on Rare Disease Day: the Rare Disease Day Relay. The Rare Disease Day Relay is an Olympic torch style run. Groups of Genzyme employees will run between four Genzyme locations in Massachusetts, passing the torch to the next group of runners when they have completed their leg. Each site is organizing a fun event coordinated with the runners’ arrival. While every site will put its own personal touches on its event, all the events have some activities in common, including:

  • Speakers: Gaucher patient Stacey Feuer and Mary Dunkle from the National Organization for Rare Disorders (NORD)
  • Bake sale:  All donations will be given to NORD.
  • Raffle: Prizes include Expression of Hope posters, gift certificates to restaurants near your site, and a Kindle.
  • Opportunities to connect with the rare disease community and with your colleagues through celebrating Rare Disease Day 2012
  • Welcoming the relay runners and/or sending them off in style!

“Alone we are rare; together we are strong.”

Rare Disease Day is an annual, awareness-raising event co-ordinated by EURORDIS at the international level and the National Alliances of Patient Organisations at the national level

February 29, 2012 marks the fifth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 European countries.On this day hundreds of patient organisations from more than 40 countries worldwide are organsing awareness-raising activities converging around the slogan “Rare but strong together”.

Activities will take place across Europe, all the way to Russia, continuing to China and Japan, in the US and Canada, and as far as Australia and New Zealand!

The focus of this year’s event is Solidarity.

Learn more at http://www.rarediseaseday.org/

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One comment on “Rare Disease Day 2/29/12
  1. Jean Campbell says:

    Best wishes to Phil and the Genzyme Boston Marathon team for another successful run! You are an incredible group of individuals; Wishing you fair weather!

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