To our Patient Partners…

I have a confession to make. It has been ten days since the 2014 Boston Marathon, and I have not run a single step since. I haven’t laced up my sneakers, I haven’t broken a sweat, I haven’t played even

Posted in Uncategorized

Reflecting on Marathon Weekend

It’s taken me a solid week to come down from my runner’s high and be able to compose myself enough to put my thoughts into words. It’s hard to describe how amazing Marathon weekend was without sounding over-dramatic, so I’ll

Posted in Uncategorized

Running For Rare-Christopher’s story

Our son Christopher has Hyperinsulinism (HI). He was diagnosed at 7 months of age after an observed seizure while we were on vacation in North Conway NH. At the local ER testing revealed his blood sugar level was only 27.

Posted in Patient Stories

My Run 4 Boston

I never made it to Boston but on Marathon Monday I ran for Boston in my own unofficial way from Germany. My weekend was spent studying the Boston Marathon course through reading Jessi’s recommended, “26.2 Miles to Boston: A Journey

Posted in Patient Stories

My First Marathon!

The Running for Rare Diseases team is recovering from a very special (and unexpectedly warm) Boston Marathon.  This was my first marathon and boy was it a memorable one!  This video slideshow contains highlights of Marathon Monday taken by Running

Posted in Running Stories

Don’t Fear the Wall (Mental Taper, Part 3)

Everyone who endeavors to run a marathon hears horror stories about “the wall,” the moment during a long race when a runner’s body experiences a level of physical exhaustion that is (nearly?) impossible to work through. In my first marathon,

Posted in Running Stories

I have PNH, PNH doesn’t have me

I procrastinated my way through undergrad and grad school, and so it was no surprise that the marathon is days away and I am still struggling with what I could contribute to the team’s blog.  I texted my partner Dan to

Posted in Uncategorized

Running on Stories (Mental Taper, Part 2)

For better or for worse, running is a meditative sport. I say “for better” because there are few activities as good as running to help you untangle your own thoughts. I’ve written articles and presentations on runs; I’ve solved work

Posted in Uncategorized

Lauren, Chris, Jani and Mary

My running pals will attest to the fact that the mind becomes pretty singularly focused at mile 26 on marathon day.   To say that I’m a man of few words at that point is being frivolous.  I’m a man

Posted in Running Stories

We Own The Finish Line

Today was not just another Tuesday. It started at 5am when I woke up to the news on TV live from the Boston Marathon finish line. As the news anchors reviewed today’s planned ceremonies for the first anniversary of the

Posted in Uncategorized

Welcome to the Running Archive

Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.