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Running is easy, blogging is hard….

Posted on by Rena Baek — 6 Comments ↓

Writing down your thoughts has to be one of the hardest things to do…. Those that know me even in the slightest bit know that I truly enjoy chatting with people. So, writing something for the Running For Rare blog…

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Posted in Running Stories, Uncategorized Tagged with: ,

Big City Hope

Posted on by Emma Rooney — 4 Comments ↓

With the New York City Marathon less than two weeks to go, I wanted to share why the Big Apple is such a magic location on my family’s journey with a rare disease. Earlier this year, I had an opportunity to speak on the…

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Posted in Patient Stories, Running Stories

26.2 Degrees of Keven Bacon

Posted on by Nicole Casale — 3 Comments ↓

When I think or rare disorders one thing that pops in my head is Kevin Bacon.  It’s an odd thought, but if you’ve heard of him, then you’ve probably heard of the game “6 degrees of Keven Bacon.”  If you…

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Posted in Running Stories

What is hard?

Posted on by Nicole Casale — 4 Comments ↓

I am currently training for the NYC marathon and raising money and awareness for Running for Rare. A few weeks ago I was off to meet some friends for my long run. We meet bright and early ready to run…

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Posted in Running Stories

#Anything is possible

Posted on by andrews — 5 Comments ↓

#Anything is possible This past July, I completed my first Ironman in Whistler Canada at Ironman Canada. It is still unbelievable that I was able to finish the 140.6 miles of swimming, cycling and running through the mountains around Whistler…

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Posted in Running Stories

Never Thought I’d Become a Marathoner, But Here I Am

Posted on by Kaitlin Bartlett — 2 Comments ↓

Hey all! First of all, thank you for taking the time to give me a few minutes of your time to discuss my marathon training and my Community Partner, Tara Notrica. My name is Kaitlin Bartlett, I’m 29 years old…

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Posted in Running Stories, Uncategorized Tagged with: , , , , , , , , ,

It All Came Together…

Posted on by phil — 2 Comments ↓

On April 16, 2016, the Running4Rare team came together for the first time as an independent entity working with the National Organization for Rare Disorders (NORD) and the Undiagnosed Diseases Network (UDN).  It was a very special evening for all…

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Posted in Patient Stories, Running Stories

The Lucky Ones -reposted from Crowdrise

Posted on by Emily Burke — 2 Comments ↓

This experience, joining the Running for Rare Disease team, has been about building relationships for me; I am making connections and friendships, and learning from others. I have become closer with some of my co-workers by joining this team and…

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Posted in Running Stories

Will Run for Coffee

Posted on by Emma Rooney — 1 Comment ↓

By Jen Melanson with Emma Rooney I am very excited to, once again, be part of the Running for Rare Team, this year as a runner. I’m training to take part in the Providence Half Marathon which is less than…

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Posted in Patient Stories, Running Stories

My 2016 Run4Rare Challenge

Posted on by Jason Dunklee — 5 Comments ↓

I’m excited about my 3rd year as a Run4Rare marathon runner!  This year, I am honored to be paired with the family of Grace Webster, a loving 8-year old girl with a strong spirit who died after a long struggle with Hypothalmic…

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Posted in Patient Stories, Running Stories

Welcome to the Running Archive

Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.