A few days ago, I completed my 1000th mile as a member of the Genzyme Running Team with fellow team members Jessi and Phil. Over the past two years through our weekly Tuesday morning runs in Cambridge, training runs and…

It was 1 year ago, today, on April 15, 2013 that the lives of so many people were dramatically changed forever. In the aftermath of the Boston Marathon bombing 4 people had lost their lives, and many others were seriously…

As Rare Disease Day is coming to a close, I wanted to a share a great audio clip that my patient  partner Emma recorded for rare disease day. https://soundcloud.com/caseyblumen/dear-mom-and-dad-rare-disease-day Today, I participated in the Rare Disease Day Relay (#GenzymeRelay) here…

By Andrew and Emma We blogged earlier about our “Canada-Germany Running Connection” and thought it was time that we update you on our recent races in Germany. Andrew says: I’m back in Boston since running the Berlin Marathon on September…

Rare Disease Day takes place on the last day of February to raise awareness of rare diseases and their impact on real people’s daily lives. In 2012, a relay style torch run, linking the work sites of Genzyme in Massachusetts,…

This past February, Emma, a Gaucher Patient, was the guest speaker for the Rare Disease Day events held in Massachusetts. During her visit, Genzyme Employees heard about her Gaucher advocacy project called “My Normal“. Emma developed this program as a…