Arriving in Boston 2012 was smooth, compared to the previous year stuck on the west coast wondering if I’d make Boston in time. I’d trained hard and was over the fear of the 26.2 miles, I had a very pleasing…

Below is a slideshow of the Running for Rare Diseases team from Marathon day. Click on a photo to jump to the full gallery.

My name is Kristin.  I’m an avid runner and also a patient living with a rare disorder called homocystinuria (HCU).   My journey started 34 years ago when I became the first person in the state of Maryland to be diagnosed…

Genzyme will be hosting a very special event on Rare Disease Day: the Rare Disease Day Relay. The Rare Disease Day Relay is an Olympic torch style run. Groups of Genzyme employees will run between four Genzyme locations in Massachusetts, passing…

A wise woman once wrote to me… this is what we need more of in life. inclusion. compassion. sensitivity to the people that comprise our world …the fortunate and the unfortunate. the willingness to take each other in. to believe…

During last year’s Boston Marathon event for NORD, something special happened.  My patient partner Rebecca, made a wonderful piece of artwork; a stained glass rose for our online silent auction.  The rose was purchased by a Genzyme employee, Erin, because…

April 18, 2011 (Patriot’s Day) started off with waking up at 5 AM.  I met a couple of friends and dropped them off at the Boston Common en route to Hopkinton.  From there I drove around the corner and a…

Click Here for full gallery Click Here for full gallery Photos by Jack Prior