This past weekend I carried a single dried rose petal as I competed in my first ultra-marathon, practice for an upcoming goal race. The pink petal that came along for the ride had recently arrived, tucked into an envelope with…
Blog Archives
My First Marathon!
The Running for Rare Diseases team is recovering from a very special (and unexpectedly warm) Boston Marathon. This was my first marathon and boy was it a memorable one! This video slideshow contains highlights of Marathon Monday taken by Running…
Posted in Running Stories
Don’t Fear the Wall (Mental Taper, Part 3)
Everyone who endeavors to run a marathon hears horror stories about “the wall,†the moment during a long race when a runner’s body experiences a level of physical exhaustion that is (nearly?) impossible to work through. In my first marathon,…
Posted in Running Stories
Lauren, Chris, Jani and Mary
My running pals will attest to the fact that the mind becomes pretty singularly focused at mile 26 on marathon day. Â To say that I’m a man of few words at that point is being frivolous. Â I’m a man…
Posted in Running Stories
My 20 Mile Odyssey…
I knew early on in the year that I would miss the March 21st charity run, as I would be away with my boys in New York on that same weekend. While we had a great time seeing the sights…
Posted in Running Stories
P.S. – My mind took a walk
the race is 5 races and in my opinion begins at mile 16 with(depending on who you talk to) the 1st of, and again, in my opinion the most difficult of the 4 ‘Newton Hills’. Part 1 is a total…
Posted in Running Stories
This is What it’s All About
The majority of our 2014 Running for Rare Diseases Boston Marathon Team ran from the Boston Marathon starting line in Hopkinton through mile 21 near Boston College on Saturday. It was the last long training run of the season –…
Posted in Patient Stories, Running Stories Tagged with: awareness, boston marathon, fun, marathon monday, patient partner, rare diseases, running, runningforrarediseases, training
We Run Together…
On a recent Saturday long training run, I found myself alone testing out the last part of the marathon course and not running with the usual group of weekend road warriors known as the Genzyme Running Team. Although a little…
Posted in Running Stories
Better to Have Loved in Loss
I bought a song on iTunes because I hated it so much. Any music that could make me feel so intensely sad was clearly very good. But it wasn’t supposed to end up on the running playlist I’d haphazardly put…
Posted in Running Stories
You Can’t Do It Alone
I recently took a week off to travel up the California coast and visit family and friends in San Francisco. My training plan had me running 13 miles that weekend, so I convinced my best friend Liz, who lives out…
Posted in Patient Stories, Running Stories Tagged with: boston marathon, partner, patient, patient partner, rare disease, rare disease day, running, Shwachman Diamond Syndrome, Tay-Sachs disease
Welcome to the Running Archive
Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.
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