This is What it’s All About

The majority of our 2014 Running for Rare Diseases Boston Marathon Team ran from the Boston Marathon starting line in Hopkinton through mile 21 near Boston College on Saturday. It was the last long training run of the season –

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Tune in and Turn it Up……

Now is the time for GRT to turn up the mileage and tune in to how our bodies feel as we approach taper week. Long distant running for many, including myself, is a meditative act. When I run I think;

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We Run Together…

On a recent Saturday long training run, I found myself alone testing out the last part of the marathon course and not running with the usual group of weekend road warriors known as the Genzyme Running Team. Although a little

Posted in Running Stories

Unveiling the 2014 GRT Infographic!

Let’s face it – I am a numbers guy. In grade school and beyond my favorite subject was math, I learned Pi to the 30th digit for fun, I am competitive as can be and whether or not you are,

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Those Silent Tears #4

April 2006 I continued visiting the dermatology office for PUVA treatments about three times a week.  Shortly after treatments began, my scalp began to burn and become extremely sensitive and irritated.  I then had to be prescribed with a topical

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Better to Have Loved in Loss

I bought a song on iTunes because I hated it so much. Any music that could make me feel so intensely sad was clearly very good. But it wasn’t supposed to end up on the running playlist I’d haphazardly put

Posted in Running Stories

My Bones Just Don’t Like Me…….

I don’t have a disease, “my bones just don’t like me”….. In a recent meeting with my patient partner Natali, this is how she described her condition and is a testament to her sense of humor and the positive spirit

Posted in Patient Stories

Those Silent Tears-#3

March 31, 2006 This was the first damp, dreary day that was the onset of what would be a series of unfortunate and catastrophic events.  I awoke earlier than usual, as I was assigned to a special project with the

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26.2 Miles of Personal Transformation

When I run I typically leave the headphones and music at home as I like to use that time for thinking and reflecting.  With all the training these days for Boston there has been plenty of time to reflect (we

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You Can’t Do It Alone

I recently took a week off to travel up the California coast and visit family and friends in San Francisco. My training plan had me running 13 miles that weekend, so I convinced my best friend Liz, who lives out

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Welcome to the Running Archive

Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.