The following is a story that Jessi and I worked on for Genzyme’s intranet, to share our community’s story with everyone at our company. We thought our blog readers may like to read it, too. As you’ll see, it is…
#Boston Strong
It has been ten days since the horrific events that occurred at the Boston Marathon. On the morning of the marathon as a member of the Running for Rare Diseases Team I was feeling excited about the new connections that…
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Habits and Opportunities
There are 3 elements of a habit: a trigger, a routine and a reward. For example, my morning starts at 4:15 AM when my alarm goes off – the trigger. Having planned the previous evening to meet a co-worker at…
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Marathon Update
A belated note to the blog to let you know that all the team runners and patient families are safe. Each of us was overwhelmed when we returned home by the concerned calls and messages reaching out to us from…
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Follow the Runners on Race Day
If you plan on watching the Boston Marathon on Monday, April 15, be sure to cheer for the 17 members of the “Running for Rare Diseases†team who are running for the National Organization for Rare Disorders (NORD). Runners have…
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Warrior Paint Campaign
Marathon Monday is almost here!! As you know Phil Madera will be running in honor of our little Wylder James who battled Niemann Pick A disease.  This is a beautiful reminder the GOODNESS in the World that Wylder taught us is out there everyday. …
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