Journey… of Running!

My running experiences began as early as I was in middle school as, intraschool track and field competitions. We were assigned to junior, intermediate and senior bins based on the height and weight. I was more of junior/intermediate category, till

Posted in Running Stories

Getting diagnosed with Cushing’s is a marathon, not a sprint

As a former marathoner myself, I see so many parallels between the marathon and getting diagnosed with a rare disease (Cushing’s in particular). Crossing the finish line of the marathon is such a mix of pain, exhaustion and relief. As

Posted in Uncategorized

From Skepticism to One Awe Inspiring Experience…

On January 20, 2014, a young girl, just turned 18 years old, received an email. That email was from NORD (the national organization for rare disorders) and stated that Genzyme was looking for patient partners for the Boston Marathon. The

Posted in Patient Stories

Running for Sam

  On friday I had the great fortune to meet my patient partner Sam, and his parents, Allyson and Nick Buck, in their home in Greenwhich, CT. Allyson has already posted a great summary of Sam’s story. Sam is an amazing little

Posted in Patient Stories, Running Stories

Measuring Life with Coffee Spoons

I used to be one of those people for whom being on time was at least 5 minutes early. But these days, I’m perpetually running late – trying to squeeze in 1 or 2 more things before I leave the

Posted in Uncategorized

Sam Vs. VWM

Andrew Hegedus is Sam’s running partner. Here is our story. Sam is happy 4-year old, full of life, quick to laugh and smile. He has a great sense of humor. He is loving, affectionate, grateful and appreciates the little things

Posted in Patient Stories, Uncategorized Tagged with: , , ,

Blizzard 2015 Rare Style

Monday we spent the day running around getting ready for the 24 inches of snow they called for in Southern New Hampshire (we ended up with 33 inches). Besides the food and water, generator for heat, we have another necessity

Posted in Uncategorized

Mom Knows Best (Gaby’s Story)

Hello! My name is Gabriella Talarico, but everyone calls me Gaby. I am a 20-year-old sophomore attending Rutgers University. I aspire to graduate with a degree in Food Science, I love to swing dance, and I have made great friends

Posted in Patient Stories

Snow shoes…not snowshoes

On our first weekly team call last Wednesday I polled the team for some advice on running in the snow, something that I had never done before. I figured who better to ask than a group of runners from Boston?!?

Posted in Running Stories Tagged with: ,

Snow Run

I hate the cold and am not a fan of snow. Hence my getting a membership to Boston University’s FitRec, which features an indoor track. That is where I plan to do the vast majority of my training this winter.

Posted in Running Stories Tagged with: , , , ,

Welcome to the Running Archive

Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.