The majority of our 2014 Running for Rare Diseases Boston Marathon Team ran from the Boston Marathon starting line in Hopkinton through mile 21 near Boston College on Saturday. It was the last long training run of the season –…
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Sisters
My best friend is my sister. Growing up, my parents worked different shifts so that someone could always be home with us. Most nights, while my mom was at work, my dad would be asleep on the couch. I essentially…
Running Tales by Emma
This April, I will be running in the Boston Marathon raising awareness for Rare Diseases, a cause that I am very passionate about. In a previous blog post, my patient partner Emma and I shared our story of how we…
Posted in Patient Stories, Running Stories Tagged with: patient partner, rare disease day, rare diseases, running
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