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Rare Disease Day Relay 2014

Posted on by jackp — 6 Comments ↓

Back on February 29th, 2012, I was in Allston for a meeting and brought along my camera along to try to snap a few shots of the employees running the final leg of the inaugural Rare Disease Day Relay from…

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Posted in Running Stories

Running Tales by Emma

Posted on by andrews — 6 Comments ↓

This April, I will be running in the Boston Marathon raising awareness for Rare Diseases, a cause that I am very passionate about. In a previous blog post, my patient partner Emma and I shared our story of how we…

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Posted in Patient Stories, Running Stories Tagged with: , , ,

I Run for Quinn

Posted on by Kailene — 1 Comment ↓

On Monday, April 15th, 2013, my husband and I ran the 117th Boston Marathon while I was 14 weeks pregnant.  Six months later, we welcomed to the world a beautiful baby girl that we named Emerson.  She joined her two…

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Posted in Patient Stories, Running Stories

“Team”

Posted on by Cian O'Brien — 3 Comments ↓

I moved to Boston in Sept with my family to work in Allston. It’s been a great first 4 months. My kids have settled in and my wife and I have made some great new friends. The real test for us was going back to Ireland over the holidays but we’re back in Boston now a couple weeks after our trip and loving it here just as much – we passed the test!

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Posted in Running Stories

I am running the 2014 Boston Marathon.

Posted on by Shay Zukowski — 3 Comments ↓

That sentence still doesn’t seem real to me. I’m not sure when exactly it will sink in – maybe at the starting line? Running a marathon is something I never in a million years thought I’d be able to do…

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Posted in Running Stories, Uncategorized Tagged with: , , , , , , , , ,

A Holiday Hat Trick

Posted on by Jessi — No Comments ↓

Sub-freezing temperatures, dark mornings with reluctant dawns, warm pillows that are so much more inviting than icy sidewalks and windblown river paths. All the familiar signs of the Boston Marathon training season are here again. My teammate Jack calls this…

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Posted in Running Stories Tagged with: , , , , , , , , , ,

2013 NORD Gala

Posted on by phil — 1 Comment ↓

Last Tuesday night, I was honored to attend the NORD Gala with fellow team members Kai and Kristen.   The Gala celebrated 30 years since passage of the Orphan Drug Act and included moving speeches from some of the most influencial…

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Posted in Running Stories

Optimism Despite Tragedy: Words from Genzyme’s 2013 Boston Marathon Team

Posted on by amy atwood — 1 Comment ↓

The following is a story that Jessi and I worked on for Genzyme’s intranet, to share our community’s story with everyone at our company. We thought our blog readers may like to read it, too. As you’ll see, it is…

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Posted in Patient Stories, Running Stories

Right on Hereford, Left on Boylston

Posted on by Jessi — 5 Comments ↓

To those denied the opportunity to go right on Hereford, left on Boylston in the 117th Boston Marathon and to those whose lives were irrevocably altered by doing so. This is for you. It was a Saturday in mid-January, and…

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Posted in Running Stories

The Starting Line

Posted on by Jessi — 6 Comments ↓

Every year after tens of thousands of runners have finished the Boston Marathon, Race Director Dave McGillivray stands at the starting line in Hopkinton, ready to run the course. His day started before dawn and was filled with making harried…

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Posted in Running Stories

Welcome to the Running Archive

Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.