My name is Kristin.  I’m an avid runner and also a patient living with a rare disorder called homocystinuria (HCU).   My journey started 34 years ago when I became the first person in the state of Maryland to be diagnosed…

Genzyme will be hosting a very special event on Rare Disease Day: the Rare Disease Day Relay. The Rare Disease Day Relay is an Olympic torch style run. Groups of Genzyme employees will run between four Genzyme locations in Massachusetts, passing…

A wise woman once wrote to me… this is what we need more of in life. inclusion. compassion. sensitivity to the people that comprise our world …the fortunate and the unfortunate. the willingness to take each other in. to believe…

During last year’s Boston Marathon event for NORD, something special happened.  My patient partner Rebecca, made a wonderful piece of artwork; a stained glass rose for our online silent auction.  The rose was purchased by a Genzyme employee, Erin, because…

April 18, 2011 (Patriot’s Day) started off with waking up at 5 AM.  I met a couple of friends and dropped them off at the Boston Common en route to Hopkinton.  From there I drove around the corner and a…

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it is friday morning. the sun is hours away from rising here in the southwest. yet i am sure each of you has been awake for hours. i cannot imagine what thoughts filled you on the eve of 26.2 miles…

The night before the Marathon.  Hours away from doing my first Boston.  It is an exciting and nerve-wracking time all at once.  I probably should already be in bed, but an inevitable restlessness has kicked in. I have an additional…

So it’s Friday before the marathon. Last day at work before the big day. The next time I see certain people I’ll have another marathon under my belt (assuming nothing goes wrong between now and mile 26). In true fashion,…

a rose is a rose is a rose…. i did not hesitate a moment in offering to contribute to this years team genzyme runners and their auction supporting NORD. of course i would embrace the chance to use the efforts…