Watch the video story about Running for Rare Diseases Team coming to Paris. For over two years now, Emma and I have pursued a “We Run Together†campaign, running many miles together virtually. This includes during last year’s Boston Marathon,…
Blog Archives
#WeRunTogether from Boston to Paris
Posted in Running Stories Tagged with: Paris Marathon, patient partner, providencehalfmarathon, running, runningforrarediseases, weruntogether
Wow! How do I say thank you!
It’s hard to believe as I sit here in Oregon experiencing a rare 80 degree day that one week ago today I was at milepost 14.5 in pouring rain experiencing my first marathon and waiting for my partner Lisa to come…
Posted in Patient Stories, Running Stories, Uncategorized Tagged with: #running4rare, awareness, boston marathon, genzyme, Lindy, Lisa, MLDfoundation, patient partner, runningforraredisease, runningforrarediseases
The Positive Impact of Patient Partners during the Boston Marathon
Yesterday, our team completed the first of two marathons along the Running for Rare Disease journey this year. The Boston Marathon is the super bowl of marathons. The one every marathon runner aspires to tackle. We were lucky enough to…
Posted in Running Stories
RFRD Online Auction is Up!
The Running for Rare Diseases online auction is NOW LIVE and will close at 12:59:59 on Friday, May 1, 2015. Access the auction here: http://auction.runningforrarediseases.org/ There are already approximately 40 items – everything from original artwork and Patriot’s tickets to restaurant and…
Posted in Patient Stories, Running Stories
Nerves
This is not about running. I don’t know how many times we’ve said that, and I feel like I am a prime example, because there’s no way I would do this if it was about running. I do it because…
Posted in Running Stories Tagged with: #running4rare, awareness, boston marathon, Marathon, marathon monday, patient partner, rare diseases, running, runningforrarediseases, training
Songs, playlists, memories… forever
What if you had the opportunity to associate yourself with a song such that every time the song was played the listener envisioned your smiling face?   Over the past two years I have held ‘Playlist Fundraisers’ where co-workers, friends and family…
Overcoming the February Funk
I feel like a broken record complaining about the snow. But for the past 6 weeks, it’s all anyone in Boston has talked about. And as ridiculous as it might sound to complain about something as basic as the weather,…
Posted in Running Stories Tagged with: #running4rare, awareness, boston marathon, Marathon, Niemann Pick, patient partner, providence marathon, rare disease day, rare diseases, relay, running, running for rare diseases, training
I’m in!!
I run predominantly in the mornings, generally between 5 and 6am at a length of 6-10 miles each day during the week. I choose the morning because this is my time; no meetings, no lost family time, and nothing else…
Run Happy. Run Smart. You’re Awesome.
To all my running teammates in New England – Run happy. Run smart. You’re awesome. Since January 23, the Boston area has received 90.2 inches of snow – that’s more than 7 ½ feet! February 2015 is only halfway done…
Posted in Running Stories
Journey… of Running!
My running experiences began as early as I was in middle school as, intraschool track and field competitions. We were assigned to junior, intermediate and senior bins based on the height and weight. I was more of junior/intermediate category, till…
Posted in Running Stories
Welcome to the Running Archive
Archive of posts from Marathon runners dedicated to making a positive impact on the lives of people with serious disease.
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