Dear all Arrived from France in September and I am honored to start this 2015 challenge with Running for Rare Diseases Marathon Team. I would like to thank you all, as this project reminds me the deep reason of my…

June 2007 I underwent an abbreviated session of IVIG. I was referred to a Hematologist and underwent my first bone marrow biopsy. I did not know what to expect, so I am assuming I was a bit more relaxed for the…

January 2007 I became violently ill, extremely weakened and no longer had the balance to even walk. I crawled to get to the bathroom and could only wash off in the bathtub. The EMS calls became more and more frequent.…

A few days ago, I completed my 1000th mile as a member of the Genzyme Running Team with fellow team members Jessi and Phil. Over the past two years through our weekly Tuesday morning runs in Cambridge, training runs and…

June 2006 I consulted with a Specialist who was now primarily treating pediatric patients.  I had seen him a few years back for pseudo-anaphylactic episodes and difficulty conceiving.  Little did we know those would eventually become extremely important clues to my ultimate…

This is my first post, so bear with me. I have many thoughts to share about my experience of running the 2014 Boston Marathon as part of the Genzyme Running Team for NORD. In keeping with our captain’s advice, Phil…

I have a confession to make. It has been ten days since the 2014 Boston Marathon, and I have not run a single step since. I haven’t laced up my sneakers, I haven’t broken a sweat, I haven’t played even…

It’s taken me a solid week to come down from my runner’s high and be able to compose myself enough to put my thoughts into words. It’s hard to describe how amazing Marathon weekend was without sounding over-dramatic, so I’ll…

I procrastinated my way through undergrad and grad school, and so it was no surprise that the marathon is days away and I am still struggling with what I could contribute to the team’s blog.  I texted my partner Dan to…