The holiday season was upon us.  It is always such a busy time for everyone, and things just sometimes go unnoticed.  Kids were busy cramming for tests to be taken before the holiday break, parents and siblings were bustling about…

What a great weekend meeting my patient partners for this year’s marathon team. Hayden and Tanner invited me to meet them this weekend to run on their T-Gen Running for Kids with Rare Diseases team at the P.F. Chang Rock-n-Roll…

On Friday, we lost Sam Berns,  a remarkable young man to Progeria .  Sam, age 17,  was diagnosed at 22 months of age with Progeria, a rare, fatal genetic condition characterized by an appearance of accelerated aging in children.   Children with…

The Running for Rare Diseases Team is seeking passionate community members to join our 2014 Boston Marathon Team as patient partners! Patient Partner Testimony: For those of you who don’t know me, my name is Kristin. I’m an avid runner…

Team Wylder Nation Race Report:  Ghost Train 100 Mile Endurance Race 10/26/13 – 9:00 AM From the top going clockwise…Kaitlyn, Lily, Riley, Amber, Faith, Quinn, Trek, Jacob & Wylder (center) I got up at 5:00 AM and went through my typical…

Tomorrow, I will run with my team of angels, Trek, Jacob, Kaitlyn, Quinn, Lily, Riley, Faith and Amber and Wylder  at the , Ghost Train 100 endurance race.                                         October is…

Most of you know about the injury which occurred at my last 100 mile race attempt on June 15, 2013.  Since then, I have aggressively sought to overcome this adversity.  I have made many changes in my training including adding rolling,…

By Andrew and Emma We blogged earlier about our “Canada-Germany Running Connection” and thought it was time that we update you on our recent races in Germany. Andrew says: I’m back in Boston since running the Berlin Marathon on September…