This is not about running. I don’t know how many times we’ve said that, and I feel like I am a prime example, because there’s no way I would do this if it was about running. I do it because…
Those Silent Tears #9
March 18, 2015-It’s hard to imagine that in just a few short weeks, it will be the four-year anniversary of being diagnosed and the nine-year anniversary of my entire world being rocked. It had been a five-year span of multiple diagnoses and toxic…
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Howdy from Austin!
I’m Melissa, the resident blogger for the Emerson Austin team. This is the first time that our company has participated with Genzyme and New England Controls in Running for Rare Diseases. Our team is made up of 11 runners (well…
Thank you and Happy St. Patty’s Day
Hi, I want to wish you all a Happy St. Patty’s Day and thank you all for Running for Rare Disease, especially my running partner Lisa V! It took six years before anyone knew what was wrong with me.…
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Garrett the Grand – Batten Fighter
Hello Runners and Patient Partners, My name is Nancy Coyne and my son is Garrett Coyne, age 4. Garrett is paired with Zeb Jones who is running the Boston Marathon! So who do I talk about first, Garrett or Zeb?! Well…
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